im new to the group and am in the US. I have noticed that many of you are Australian. I’ve been trying to find online support for my sliding hiatal hernia condition. I have a completely nonexistent LES (caused by heavy lifting at my job) and am thoroughly and overwhelmingly tortured by reflux, nausea, bloating, vomiting, chest pain, back pain, shoulder pain, neck pain, vertigo, and headaches but mostly chest pain (under my ribs) back pain and unrelenting reflux even though I take 40 Omeprazole and Ranitidine, plus sucralfate every day. It has made my life a living Hell. I went from being a vibrant, healthy and extremely active 48 year old woman to a broken down old woman of 52 who can’t keep a commitment, who has lost her jobh of 13 years, and who rarely leaves the house. I hardly eat anythingn eggs, cottage cheese, rice cakes! Fruit, vegies, and only a fistful at a time. My eating needs alone keep me housebound quite frequently. My GI doc is taking his sweet time getting me hooked up with a surgeon for fundoplication and I feel like my stomach is moving farther up into my chest cavity every day. It hurts so much it makes me cry and sends me to the ED at least once a month(where they won’t give me anything for pain). I know the pain is caused by the stretching of the diaphragm and the stomach moving into my chest cavity and pressing on my vagus nerve. My question is have any of your doctors addressed your very legitimate pain with anything other than PPIs?
I feel like if it just didn’t hurt so much I could actually be productive on some level. But here in the US there is now a war on opioid based pharmaceuticals and if you even ask for them you are labeled a ‘med seeking’ drug addict. Have any of you had nerve blockers of any kind for the pain from the Vagus nerve compression?
This pain is making me feel extremely depressed and my PCP has put me on an antidepressant, which helped for a while and still helps a little but there are days that I just wish I was dead; that I want to be dead. It is such a hopeless feeling knowing that there is a potential scenario in which I could feel like this for the rest of my life with no help from the medical profession. I have become someone I no longer recognize physically, mentally, or emotionally. That is no life at all.
i sure could use a friendly word of support and some clue as to how to deal with the pain.
thanks all for reading...
My best to all of you who suffer as I do.