7 Replies

  • Posted

    Hello Carolyn. I have not heard of that but perhaps it is possible. I have idiopathic small fiber neuropathy and there is no cure for it. Have tried the Gabapentin and all sorts of things like Lyrica and the only thing that helps me is the hydrocodone to relieve my pain from it. It took months of tests and no findings. Took a skin punch biopsy to find it. Do a lot of google research that shows studies. I have had the neuropathy diagnosed in 2011, but had it for years and they couldn't find what it was. I was on Benzo's for 20 years, just got off earlier this year. I had the neuropathy before and after the Benzo's I am sure. I have been on pain meds (low dose for over 20 years for degenerative disc and joint disease. 5-325 of hydrocodome with tylenol. Hopefully someone else can give their input. I am not a doctor and can only go by what I experience. Enjoy your day! Ruby S

    • Posted

      Thank you for your reply. I too was on benzos for over 20 years and these sadly caused neuropathy amongst a lot of other things. I am now off them and hope to heal but dr says it may take 12 months. I wish you well too, take care. x I was on lyrica sister drug of Neurontin but neurologist discontinued it as it caused a movement disorder.
    • Posted

      I too am a sufferer due to benzos and statins according to my endocrinologist. I had to stop the statins. 
  • Posted

    Hey carolyn- just letting you know I developed neuropathy immediately while tapering off the drugs... i was on them for 9 years and I think it alters your gabba receptors.  There are many folks on benzo/ z drug discussion groups i've spoken too that have experienced the same effects.

    • Posted

      sorry to interject but can you please PM the contact details of the other groups. Thanks.
    • Posted

      Which benzos were you taking and for how long can I ask ? TY
    • Posted

      Hey jhow21- 

      I was on all kinds of z-drugs (mostly zolpidem- z drugs are cousin to benzos) for 9 years and Temazepam for one of those years.

      I do t know if I’m allowed to list other forums on here.. but a quick google search for benzo forums will land u a bunch - biggest is b buddies. There u can contact others for further info.  

      What symptoms do u have? And what drugs were u on?

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